Comparaison des lignes directrices sur les bio banques: consensus émergeants et controverses irrésolues
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Auteur(s)Dr Nikola Biller-Andorno , Université de Zürich (Unizh) . Dr Andrea Boggio , Université Bryant, USA . Dr Alexander M. Capron , Université de Californie du Sud (USC) . Dr Bernice Elger , Institut d'éthique biomédicale , Faculté de médecine , Université de Genève (Unige) . Prof. Alexandre Mauron , Institut d'éthique biomédicale , Faculté de médecine , Université de Genève (Unige) . |
Projet de recherche
Bases de données génétiques humaines: Vers un cadre éthique global
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Mots-clés
Biobanques - BioéthiqueRésumé
Ce résumé n'existe qu'en anglais
In this paper, we present a comparative analysis of twenty-seven policies on biobanks. The paper is structured around the three separate stages of the biobanking process (collection, storage and use of both human biological samples and data) and for each stage, we then focus on salient issues that have been debated by scholars and have been addressed by the drafters of the policies we compare. Although consensus exists on few issues and solutions, our conclusion is that existing policies do not address in sufficient detail, or do not agree on, a number of important issues raised by biobanking activities. Therefore, much empirical and theoretical work has to be done on this topic in order to highlight possible areas of disagreement on the different principles and policy arrangements and to clarify the terminology that the guidelines adopt.
Fichier(s)
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Comparing Guidelines on Bio Banks: Emerging Consensus and Unresolved Controversies
Anglais | [215 ko] > télécharger |