The Ethics and Regulation of Human Genetic Databases - Global Perspectives

Author(s)

Mr Alexander M. Capron , University of Southern California (USC) .

Dr Nikola Biller-Andorno , University of Zürich (Unizh) .

Dr Bernice Elger , University of Geneva (Unige) .

Prof Alexandre Mauron , University of Geneva (Unige) .

Research Project

Human Genetic Databases: Towards a Global Ethical Framework

> see the project description

Keywords

ethic - genetic databases

Abstract

Population genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks.

File(s)

Ethical Issues in Governing Biobanks - Global Perspectives
> see Web Page